I read a post on the Ependymoma list today. It was from a woman whose husband is paralyzed from the neck down. I asked her if his paralysis followed surgery on his ependymoma. She replied that the medical community won't say exactly what caused the paralysis, but her hub never learned to walk after the second surgery he had and they think it may have been the radiation he never should have had. After I had surgery, my neurosurgeon said that was it as far as surgery benefitting me anymore. Further surgery would just interfere with the quality of life I had. After checking in with a neuro-radiologist and radiation oncologist in Dallas at Baylor, we were told that my tumor infiltrated the brainstem and radiating the brainstem can cause more problems to my quality of life than any benefit in stopping the growth or shrinking the tumor including myelitis (inflammation and swelling of the spinal cord) and brainstem necrosis (death of tissue.) I decided not to take the risk of these conditions that would interfere with my quality of life. My quality of life (QOL) is not perfect now, but I still have bladder control, my vitals are good and even though I am weak and have very poor stamina, I can still walk and I have a good degree of independence and QOL.
Showing posts with label ependymoma. Show all posts
Showing posts with label ependymoma. Show all posts
Saturday, May 17, 2008
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